# Disabilities



Iowa Democratic Party's Disability Caucus endorses Dr. Glenn Hurst

Julie Russell-Steuart is a printmaker and activist who chairs the Iowa Democratic Party’s Disability Caucus.

Glenn Hurst is a rural doctor in the small southwestern Iowa town of Minden and a founding member of Indivisble Iowa, whose activism helped elect U.S. Representative Cindy Axne. He faces Abby Finkenauer and Mike Franken in the June 7 Democratic primary for U.S. Senate.

Dr. Hurst has earned our endorsement for his strong experience advocating for people with disabilities and because he is laser focused on improving the lives of the American people in crucial ways.

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The boy written out of "The Music Man"

Kurt Meyer writes a weekly column for the Nora Springs – Rockford Register, where this essay first appeared. He serves as chair of the executive committee (the equivalent of board chair) of Americans for Democratic Action, America’s most experienced liberal organization.

I led a life-long learning class at North Iowa Area Community College in Mason City this month. My subject: “Midwestern History as Told by Midwestern Authors,” a topic I selected last fall, when pandemic-limited plans prompted me to read (or re-read) various regional writers.

My premise has always been that history is much more than just key dates and major events. We benefit from knowing how previous generations lived, what they valued, and how they engaged in society. Greater understanding gives us a more enlightened perspective while strengthening our community ties. This doesn’t generally come about by reading history tomes – since most of us won’t – but rather by reading authors who set their fictional or autobiographical works in the Midwest.

In preparation, I stumbled upon a story that ran in the New York Times last December, although I missed it at the time. It involves North Iowa’s own Meredith Willson.

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Build back something

Charles Bruner: Taxes, inflation, and essential services … there’s an obvious solution for Democrats.

President Joe Biden and Democrats in Congress have done much to support essential workers and provide economic help to working and retired Americans during the height of the COVID-19 pandemic. Several of those actions were designed to become permanent: improvements to the child tax credit, investments in child care, and expansion of home and community based services and the direct care workforce.

Established in the American Rescue Plan Act through a process known as reconciliation (which requires only a simple majority vote and therefore could be enacted without Republican support), these policies have proved both popular and effective.

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Iowans facing big cuts to food assistance

Approximately 290,000 Iowans living in some 141,000 households will receive less food assistance beginning in April, due to Governor Kim Reynolds’ decision to declare the COVID-19 state of emergency over.

Leaders of area food pantries are expecting a surge in demand, as Iowans’ Supplemental Nutrition Assistance Program (SNAP) benefits will drop by at least $95 per household, and in some cases by more than 90 percent.

According to the Iowa Hunger Coalition, “The average SNAP benefit for individuals will drop from $2.65 per meal to an estimated $1.52 per meal. Total SNAP benefits issued in the state of Iowa will decrease by an estimated $29.5 million,” a 42.6 percent reduction.

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Iowa legislature may be more diverse after 2022 election

Iowans may elect more people from under-represented populations to the state legislature in 2022, Bleeding Heartland’s analysis of the primary and general election candidate filings indicates.

One barrier will certainly be broken: as the only candidate to file in House district 78, Democrat Sami Scheetz will become the first Arab American to serve in our state legislature.

The lawmakers who convene at the statehouse next January may also include Iowa’s first Jewish legislator in nearly three decades as well as more people of color, more LGBTQ people, and the first Paralympian.

A forthcoming post will discuss prospects for electing more women to the Iowa House and Senate.

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Medicaid bills deserve a hearing

Jenn Wolff of Waverly is a member of Upgrade Medicaid.

Iowans with all different kinds of disabilities, their families, caregivers, and allies have spoken out about the need for changes to Medicaid since the Branstad-Reynolds administration privatized the program more than five years ago.

The U.S. Department of Justice report on state-run institutions in Glenwood and Woodward, released in December 2021, provides additional evidence of pervasive bias and segregation, caused by Iowa’s failure to invest in Home and Community Based Services.

My question to all Iowa elected officials and legislators is, why does legislation seeking to improve Medicaid die without discussion or opportunity for public comment?

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Republican policies fuel Iowa's workforce crisis, rural decline

Senator Joe Bolkcom represents Iowa City and is the ranking Democrat on the Iowa Senate Appropriations Committee.

Iowa’s workforce crisis and rural decline can be traced to irresponsible Republican tax and economic policies year after year.  

Their actions bring to life the words of their puppet master Grover Norquist, who famously said, “I don’t want to abolish government. I simply want to reduce it to the size where I can drag it into the bathroom and drown it in the bathtub.”

As Governor Kim Reynolds and legislative Republicans return to the statehouse, their workforce crisis and abandonment of rural Iowa will only grow worse with more tax cuts for Des Moines millionaires. The Republican strategy is to stay the course by continuing to starve rural Iowa’s struggling public schools, exhausted health care providers, declining state parks, dangerous prisons, and neglected state resource centers. 

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State concedes masks needed around some students with disabilities

The Iowa Department of Education has conceded that facial coverings may be required in some school settings to ensure students with disabilities have equal access to educational opportunities.

In a December 1 order distributed to Area Education Agencies, agency officials determined that the federal Individuals with Disabilities Education Act (IDEA) allows schools to make an exception to a state law that generally bans mask mandates, if a student’s Individualized Education Programs (IEP) team finds masking is needed for that child to receive the education federal law guarantees.

However, the department’s order said the IDEA does not require public schools to adopt district-wide mask mandates.

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Governor's own words helped sink mask mandate ban in court

A federal court confirmed on October 8 that Iowa cannot enforce the state’s ban on mask mandates in public schools, pending resolution of a lawsuit filed by the ACLU of Iowa on behalf of a disability advocacy group and eleven parents of children with disabilities.

U.S. District Court Senior Judge Robert Pratt’s preliminary injunction follows a temporary restraining order he issued and extended last month, putting the law on hold. About two dozen Iowa school districts, including most of the largest, have since reimposed mask mandates, affecting more than 150,000 students.

The state immediately appealed Pratt’s ruling to the Eighth Circuit U.S. Court of Appeals. In a written statement, Reynolds said, “We will never stop fighting for the rights of parents to decide what is best for their children and to uphold state laws enacted by our elected legislators. We will defend the rights and liberties afforded to all American citizens protected by our constitution.” 

The governor’s bluster is not consistent with the state’s own legal arguments, which have not asserted the Iowa or U.S. constitutions establish any right not to wear masks, or to have one’s children remain unmasked at school.

The irony is that Reynolds’ own public statements have bolstered the plaintiffs’ case against the law Republicans rushed to enact in May.

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The story of the Safe at School Sit-In

Julie Russell-Steuart is a printmaker and activist who chairs the Iowa Democratic Party’s Disability Caucus. -promoted by Laura Belin

The Urgency

On August 11, a Wednesday morning, four moms of school-aged kids arrived at the Iowa State Capitol to put on an event called the Safe at School Sit-In. Two of them had met the previous day, but this was the first time everyone had met each other in person. The fifth member was anxiously keeping an eye on her Facebook Messenger and waiting for the live feed from the Iowans for Public Education Facebook page.

Twelve days earlier, Erin Dahl and Julie Russell-Steuart, both disability advocates, had discussed wanting to do something about the failure of virtually every state institution to protect vulnerable kids and Iowans in general from COVID-19. The next day, Erin saw a post by Brook Easton on Educators for a Safe Return to School Facebook group, saying how it was incredible no one had organized a protest yet, and tagged Julie.

The post turned up more moms wanting to take action. A group was quickly formed and the first of many Zoom meetings and probably hundreds of Facebook Messages started.

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Iowans face long wait for disability services

Kyla Claussen is one of some 16,000 Iowans on waiting lists for disability services. -promoted by Laura Belin

My name is Kyla Claussen and I’m from Avoca, Iowa. I have an unknown progressive neuromuscular disorder that has been slowly taking skills away from me over the past five years. By March 2020, I was unable to walk independently anymore or work. Last August, I went on Social Security Disability Insurance (SSDI) and then applied for the Physical Disability Waiver and the Health and Disability Waiver.

I’m now waiting for services in my home, along with 15,956 Iowans on the waiting list for one of the waivers for people with disabilities. Most likely, I will be waiting for one to three years.

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A call for responsibility, accountability, and compassion in the new year

Ras Smith represents Iowa House district 62, covering part of Waterloo. -promoted by Laura Belin

Christmas, for me, is a season of spiritual tradition, personal reflection, and service to
community. Because my mom is a pastor, I had the fortune of growing up in a faith-filled church community. Today, my own children are blessed to experience a closeness to this family faith that instills in them the importance of loving and serving our fellow humans. This makes the holiday season even more meaningful.

As I reflect upon the year, I think about the thousands of Iowans who stepped up to help one another during a global pandemic. I think about people pouring into communities to clean up, provide food, build shelter, and give moral support in the wake of the devastating derecho. I think about the sacrifices of so many essential workers across the state. This is the unbreakable spirit of Iowa, and why I love living here.

But as I reflect further, my heart also hurts for families across the state who experienced preventable suffering and loss at the hands of poor leadership.

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The case for a simpler, values-driven Democratic Party platform

Jeremy Dumkrieger chairs the Woodbury County Democrats. -promoted by Laura Belin

In 2018, the Woodbury County Democrats approved the platform pasted below. It wasn’t perfect, but it was simple. It was intended to be. In fact, it could be simpler.

We wanted something we could put on a palm card to let folks know what we believe. Far too often we are bogged down by complicated rhetoric that serves only to obscure the direct message intended for everyday Iowans.

Soon the Iowa Democratic Party will host the Platform Committee’s work to finalize our state platform. I suggest they ignore specifics and finally see the bigger picture.

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The Disability Caucus: Fighting for inclusion

Eric Donat: “It’s important for inclusion to show people with disabilities in all possible roles – not just in disability-specific ones.” -promoted by Laura Belin

I’m excited to be part of the new leadership on The Iowa Democratic Party Disability Caucus as vice chair. I am Eric Donat of Waterloo and Black Hawk County.

I got my start in politics through advocacy training at the Center for Independent Living in Waterloo, Iowans with Disabilities in Action, and the Iowa Developmental Disabilities Council. Consumers at the center were connected to state legislators via our work on systems change advocacy.

Through being an advocate, I supported legislation making it easier for people with disabilities, particularly those using wheelchairs, to travel about in their communities. I also supported reorganizing Iowa’s counties into today’s mental health service regions. In addition, I advocated against privatizing Medicaid in Iowa.

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Iowa's Planned Parenthood affiliate rejects Margaret Sanger's harmful ideas

“We are owning our organization’s history and are committed to addressing the implicit bias and structural racism within our organization and communities,” Planned Parenthood North Central States declared on July 24, near the top of a statement denouncing racist and eugenicist ideas espoused by Margaret Sanger. Formed in 2018 when Planned Parenthood of the Heartland merged with a neighboring organization, the affiliate operates 29 clinics in Iowa, Minnesota, Nebraska, North Dakota, and South Dakota.

Many who believe in Planned Parenthood’s mission–especially the white women who have been the majority of the organization’s volunteers in Iowa–know little about Sanger other than that she established the country’s first birth control clinic. Although I’m a third-generation supporter of Planned Parenthood in Iowa, I was ignorant about Sanger’s eugenicist views for much of my adult life. Those views were repugnant, and it’s important for reproductive rights advocates to be clear about rejecting them.

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Only absentee ballots can solve the Iowa caucuses' two biggest problems

Part 2 in a series on how the Iowa caucuses work

I’ve written a short book’s worth of posts since 2007 on obstacles to attending the Iowa caucuses (see here, here, and here).

Over the same period, John Deeth has written extensively about overcrowded rooms in high-turnout precincts (see here and here).

The Iowa Democratic Party has tried to address both problems this cycle. Even so, many thousands of politically engaged Iowans will be unable to participate tonight. At the same time, Iowans mobilized by several well-organized campaigns will make many precinct caucuses extremely difficult to manage (not to mention fire hazards) in larger counties and college towns.

If we are to remain first in future presidential nominating contests, Democrats must take the obvious step toward making the Iowa caucuses accessible to all and less of a logistical nightmare.

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Deadline approaching to request accommodation for Iowa caucuses

When the Democratic National Committee nixed the “virtual caucus” plan, they destroyed any possibility of Iowans with disabilities participating in the February 3 caucuses by phone. Nevertheless, the Iowa Democratic Party is trying to make the in-person caucuses more accessible than in the past.

Democratic county party organizations have long been encouraged to arrange for precinct caucuses to be held at facilities that comply with the Americans with Disabilities Act. However, that doesn’t eliminate all barriers that might keep someone from fully participating in the first step of the presidential nominating process.

For the first time this year, Iowa Democrats can submit a request for accommodation at their precinct caucuses.

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Why I am supporting Elizabeth Warren

Amanda Rex-Johnson is an activist in central Iowa. -promoted by Laura Belin

I started volunteering on presidential campaigns last year long before I had identified my favorite candidate. My goal was to support folks getting more involved in the Iowa caucuses while advocating accessibility needs directly to the campaigns.

Not all the campaigns were easy to engage with. Despite multiple efforts, I was unable to connect with a top candidate’s operation here in Des Moines. When I found out that one of his top staffers would be a guest speaker at a training I was attending, I was excited to finally have a chance to ask how to volunteer and what they were doing to make their campaign more accessible for volunteers and organizers.

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Why I support Amy Klobuchar

Jackie Wellman is a Democratic volunteer in West Des Moines and a board member and Iowa ambassador of the Spastic Paraplegia Foundation. -promoted by Laura Belin

For years I was in denial about having a progressive, rare motor neuron disease, but the fact is that I have Hereditary Spastic Paraplegia.  Senator Amy Klobuchar is the co-sponsor of the rare disease caucus.  When someone is fighting for people like me and my son, they deserve a look. 

The senator was at my house in 2016 while stumping for Hillary Clinton.  I went to see her speak to the Asian Latino Coalition last April, walking away with even more appreciation.

After reading more about her and speaking to her, I decided she was the one I would be working for. Last June, I endorsed after trying to see as many candidates as I could.  Here are the reasons why:

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Iowa Democrats dismiss Julián Castro's critique at our peril

“If you didn’t know anything about this process, and I told you how it was set up, you would think that a right-wing Republican set this process up, because it really makes it harder to vote than it should be,” Julián Castro told a room full of Iowa Democrats at Drake University on December 10.

Castro’s campaign organized the town hall (which I moderated) to highlight problems with the Iowa caucus system and a calendar that starts with two overwhelmingly white states.

Now that Castro has ended his presidential bid, it may be tempting to dismiss his critique as sour grapes from a candidate who wasn’t gaining traction in Iowa.

That would be a mistake. Castro is only the most high-profile messenger for a sentiment that is widespread and growing in Democratic circles nationally.

If Iowa Democrats want to keep our prized position for the next presidential cycle and beyond, we need to acknowledge legitimate concerns about the caucuses and take bigger steps to make the process more accessible.

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Deadline approaching to apply for Iowa Democratic satellite caucuses

Although the Democratic National Committee rejected Iowa’s plan to hold “virtual caucuses” by phone, some Iowans who are unable to attend their precinct caucus on February 3, 2020 may still be able to participate at some other location. But the Iowa Democratic Party will soon stop accepting applications to hold satellite caucuses.

What you need to know if you want to make alternate arrangements for caucus night:

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Julián Castro brings one of the most important voices to the table

Kyla Paterson chairs the Iowa Democratic Party’s Stonewall Caucus. They are endorsing in their personal capacity. The Stonewall Caucus will remain neutral before the Democratic National Convention. -promoted by Laura Belin

I am endorsing former U.S. Housing and Urban Development Secretary Julián Castro and will continue being an endorser of Senator Cory Booker of New Jersey (whom I endorsed September 16), because both of them share my values.

I am endorsing Secretary Julián Castro because his voice is unique. His voice is being erased–the media aren’t giving him the coverage he deserves–and we can’t allow erasure to happen anymore.

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Why I'm running for Davenport City Council

To my knowledge, Dirk Hillard would be Iowa’s only Deaf elected official if he wins a seat on the Davenport City Council. -promoted by Laura Belin

My name is Dirk Hillard. I am running for city council for Davenport’s 8th Ward.

I have lived in the ward for ten years while working for the Joint Manufacturing and Technology Center on the Rock Island Arsenal. I am familiar with my neighborhood, this city, and our region. I know the good things about living in Davenport as well as the challenges our city faces, such as public safety, infrastructure, and economic development.

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"Plan B" for the Iowa caucuses will leave many disenfranchised

The Iowa Democratic Party has approved a plan to replace the “virtual caucus” recently nixed by the Democratic National Committee.

But while a news release hailed the proposal to “increase participation and make the caucuses more accessible for Iowans who have traditionally been unable to attend their in-person precinct caucus,” many Democrats won’t be able to use satellite caucuses.

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Governor's health policy adviser claims ignorance about Medicaid problems

Service cuts to Iowans with disabilities under privatized Medicaid prompted a 2017 lawsuit, became a central theme of the 2018 governor’s race, and were a featured problem in an annual report from the state ombudsman.

Yet in a meeting with advocates last week, Governor Kim Reynolds’ health policy adviser said she is unaware of major problems for patients trying to obtain essential services.

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At what cost?

This commentary was a group effort by Upgrade Medicaid organizers Jenn Wolff, Shelley Jaspering, Kyle Spading, Elaine Gartelos, Tucker Cassidy, and Evan Schultz. -promoted by Laura Belin

Thousands of disabled Iowans rely on Long Term Support Services through Medicaid. Those services were designed to provide daily living assistance for individuals to maintain normal lives in their homes.

Because of Medicaid privatization, some individuals have been forced to consider nursing home placement, which is typically more expensive than community living.

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Auditor: Service cuts to some Iowans on Medicaid violate state contracts

State Auditor Rob Sand warned the Iowa Department of Human Services on June 26 that service cuts to two quadriplegic Iowans indicate that Amerigroup and UnitedHealthcare “have failed to comply” with their state contracts. Sand said the managed-care organizations (MCOs) have pushed both Medicaid recipients to move into assisted living, rather than meeting their contractual obligations to ensure members have access to covered benefits and adequate health care services.

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Outliers

Stacey Walker has chaired the Linn County Board of Supervisors since January. He delivered this State of the County Address on May 8. -promoted by Laura Belin

It is with great pride that I stand before you today, with the awesome task of presenting the state of the county address: an occasion I’m sure everyone here has been looking forward to since the date was announced. I know in my heart that you’re all here because you want to be, and not because your employer bought a table and needed it to be filled.

My sincere thanks to the women and men of the League of Women Voters for doing the hard work of organizing this event – and many others – designed to keep the general public informed of and engaged in the happenings of our democracy. You all are heroes.

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Medicaid and pineapple on pizza

This commentary was a collective effort by four people on the advocacy committee of the United Spinal Association’s Iowa chapter. -promoted by Laura Belin

Is pineapple on pizza acceptable?

This irrationally controversial question has divided households since the advent of Hawaiian pizza. Gordon Ramsay decisively says that pineapple has no place on pizza while Alton Brown is a staunch defender. How do we decide which reality cooking show host is the expert?

Odds are, you will choose an expert based on your pizza preference. This is called “confirmation bias.” We are all quick to ignore information that doesn’t confirm our bias and latch on to information that does.

This is exactly what happened last week when a Republican legislator took the words of disability advocates out of context on the Iowa Senate floor.

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Recognizing Bleeding Heartland's talented 2018 guest authors

The Bleeding Heartland community lost a valued voice this year when Johnson County Supervisor Kurt Friese passed away in October. As Mike Carberry noted in his obituary for his good friend, Kurt had a tremendous amount on his plate, and I was grateful whenever he found time to share his commentaries in this space. His final post here was a thought-provoking look at his own upbringing and past intimate relationships in light of Dr. Christine Blasey Ford’s allegations against Judge Brett Kavanaugh.

Friese was among more than 100 guest authors who produced 202 Bleeding Heartland posts during 2018, shattering the previous record of 164 posts by 83 writers in 2017. I’m thankful for every piece and have linked to them all below.

You will find scoops grounded in original research, commentary about major news events, personal reflections on events from many years ago, and stories in photographs or cartoons. Some posts were short, while others developed an argument over thousands of words. Pieces by Allison Engel, Randy Richardson, Tyler Higgs, and Matt Chapman were among the most-viewed at the site this year. In the full list, I’ve noted other posts that were especially popular.

Please get in touch if you would like to write about any political topic of local, statewide, or national importance during 2019. If you do not already have a Bleeding Heartland account, I can set one up for you and explain the process. There is no standard format or word limit. I copy-edit for clarity but don’t micromanage how authors express themselves. Although most authors write under their real names, pseudonyms are allowed here and may be advisable for those writing about sensitive topics or whose day job does not permit expressing political views. I ask authors to disclose potential conflicts of interest, such as being are a paid staffer, consultant, or lobbyist promoting any candidate or policy they discuss here.

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Rob Sand: If I'm elected, Medicaid MCOs will get subpoenas

Iowa’s disastrous Medicaid privatization is becoming an important theme of Rob Sand’s campaign for state auditor. While Republican incumbent Mary Mosiman was slow to embark on a review of the program and won’t promise to release her office’s findings before the November election, Sand has pledged to thoroughly investigate the operations of managed-care organizations (MCOs), which now make health care decisions affecting more than 600,000 Iowans.

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Reynolds dumped Medicaid adviser who asked tough questions

“It’s not certain to me that [my son] Matthew is safe with a Republican governor and a Republican legislature,” David Hudson told the Des Moines Register’s Tony Leys after Governor Kim Reynolds declined to reappoint him as co-chair of Iowa’s Medical Assistance Advisory Council. “And I say that as a lifelong Republican! Because I just don’t see the governor asking the right questions and doing the right thing for my son.”

By dumping Hudson and another council member who spoke out about problems related to Medicaid privatization, Reynolds has once again shown she is unwilling or unable to engage with facts on the ground related to Iowans’ health care.

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The dignity of work

Jackie Norris is president and CEO of Goodwill of Central Iowa and a longtime political organizer who previously served as chief of staff to First Lady Michelle Obama. -promoted by desmoinesdem

Yesterday, Eric Donat shared with us his thoughts about employment for individuals with disabilities. I have to say, when I saw his post I was sad and mad. Sad at hearing about his personal experience and mad that someone did not feel dignity in their workplace.

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The "dignity of work" and one's worth

Eric Donat is a Democratic activist, volunteer, and disability advocate from Waterloo. -promoted by desmoinesdem

I once worked at Goodwill of Northeast Iowa. I was paid $0.06 (6 cents) per hour minus meals. For one week of working there I was paid $3.24 – and went out and purchased an ice cream cone.

Prisoners are paid 25 to 50 cents per hour for their work and duties inside prison. Therefore, they are “worth more” and are “more valuable” than me while I was being paid 6 cents per hour when I worked at Goodwill.

For Republicans who go on about the “dignity of work”: for me, there was no dignity in “working”- in the back room sorting ţhings, while being bullied, emotionally abused, and shamed.

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When Iowa's Republicans overturned rule on gun checks for mentally ill

After yet another mass murder involving an assault weapon made national news, Senator Chuck Grassley told reporters on February 15, “we have not done a very good job of making sure that people that have mental reasons for not being able to handle a gun getting their name into the FBI files and we need to concentrate on that.” Similarly, Senator Joni Ernst said today that the U.S. needs more “focus” on mental illness, not gun control. (Not that she has any ideas on how to address that problem.)

The talking point is bogus, because people with mental illness aren’t more likely than others to commit violent crimes, and mental illness isn’t any more prevalent in the U.S. than in other countries that experience far fewer mass shootings.

But let’s leave that aside for the moment. A year ago, all of Iowa’s Republicans in Congress voted with their GOP colleagues to overturn “a sensible Obama administration rule designed to stop people with severe mental problems from buying guns.”

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